Israel Association Of Rare Diseases (Eitan)
We are an umbrella group for 22 support groups for families with rare
diseases in Israel. We currently represent the following diseases,
conditions, or syndromes:
S.M.A. - Verding Hofman
Rubinstein - rBy
V.W.D. - Von Willebrand Disease
MSUD - Maple Syrop Urine Disease
We welcome contacts from people or groups around the world with advice
or questions about these conditions.
We also encourage people with other rare diseases in Israel to contact us
so that we can include you in our representations.
Our e-mail address is:firstname.lastname@example.org