Dr. Quiroga Ruiz
Intensive Care Unit
Home Mechanical Ventilation Unit
Hospital Central de Asturias
Oviedo. SPAIN
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> De: Valerie Brew-Parrish <brew-parrish(AT)juno.com>
> A: vent-users(AT)eskimo.com
> Asunto: Re: NON INVASIVE VENTILATION
> Fecha: viernes 19 de septiembre de 1997 17:45
>
> Hello Doctor,
> I am thrilled you are so interested in non-invasive ventilation, which IS
> the type I use. Dr. Bach is right on target with what he has told you. I
> am a polio survivor, and the majority of polio survivors utilize
> non-invasive ventilation. I use a plv-100. My doctor, Oscar Schwartz, is
> an authority like Dr. Bach on non-invasive ventilation. Oscar made me a
> mouth piece out of scuba (diving equipment). I plop the mouth-piece in
> and breathe all night. My friend, Dr. Ronald Doneff, uses an electric
> wheelchair for mobility, has little use of his arms, and he uses
> non-invasive ventilation 24 hrs. a day. He uses a bantam ventilator
> during the day. When he speaks, he takes the hose and mouth-piece out of
> his mouth and talks between breaths. At night he sleeps in the tank, or
> iron-lung. Dr. Doneff has had a thriving medical practice for 30 yrs. He
> contracted polio while he was a resident at Indiana School of Medicine. I
> asked him to give a speech to the polio survivor group I sponsored. Most
> in the group were minimally disabled by polio, but oh were they on their
> pity pots. Dr. Doneff proves, anything can be done despite disability.
> The other physicians that you can network with is my doctor, Oscar
> Schwartz. He probably sees most of the respiratory polio survivors in the
> midwest section of the U.S. His phone number is: 314-645-8177; Another
> great respiratory doctor and my dear friend, is Dr. Allen Goldberg. Allen
> has traveled throughout Europe (France) studying non-invasive
> ventilation. He too has written extensively on this subject. In fact, one
> of his articles was about me in CHEST. He is also a good friend of Dr.
> Bach's. Allen works at Loyola Hosp. in Chicago. His number is:
> 708-327-9067. The other doctor you would enjoy knowing is Dr. Auguta
> Alba. She works at Goldwater Memorial Hospital in New York. Her phone #
> is: 212-318-4500. She has a web pg. that I found the other day by
> searching ventilator users. Her article talks about non-invasive
> ventilation. She taught a workshop in May that I attended about
> glassopharageal breathing. (excuse my spelling) Anyway, polio survivors
> refer to the technique as "frog breathing." Say the word "GULP" A FEW
> TIMES and quickly swallow the air. It does help you to breathe. My
> non-disabled daughter was a pro at the technique. I hope this information
> helps you dloctor. I also hope that you will attend the next
> international polio conference in 1999 in St. Louis. You will see all
> kinds of non-invasive ventilation!
> Valerie