RE: NON INVASIVE VENTILATION

=?ISO-8859-1?Q?Jose_M=AA_Quiroga_Ruiz?= (quiroga(AT)airastur.es)
Sun, 21 Sep 1997 13:07:55 +0200

Hello, Valerie:

Thank you very much for the interest you have taken answering to my
question and thanks a lot for the information you have given about doctors
working in non invasive ventilation. Of course, I´ve read a lot of papers
from Dr. Alba (most of them with Dr. Bach) and Dr Goldberg. They are very
interesting. I know personally Dr. Bach from different meetings I´ve
attended. He is very special, very enthusiastic with his job and really
very convincing when he speaks.
I agree with you when you talk about your friend, Dr. Doneff, saying there
are many things people can do in spite of their disabilities. Real strength
is not in the body but in the mind.
I´m working in home mechanical ventilation since 4 years and a half,
treating to provide coverage to our region, Asturias, located in the North
of Spain. There are lot of things we must learn. Non invasive ventilation
is more complex than ventilation trough a tracheostomy and you need more
imagination. Everybody working in HMV sould be interested in noninvasive
ventilation. But I also agree with people in this list who uses trach and
feels comfortable and confident with that type of ventilation. In terms of
efficacy of ventilation there´s no better way than vent. trough a trach. In
general I think that the ideal would be to have different methods to offer
to your patients, invasive and noninvasively.
It would be great to attend the Polio Conference in St. Louis. I´ve been
only once in the USA. That was two years ago when I attended the
International Meeting on Home Mechanical Ventilation in Denver. And I would
like to repeat the American experiencie.
Sincerely

Dr. Quiroga Ruiz
Intensive Care Unit
Home Mechanical Ventilation Unit
Hospital Central de Asturias
Oviedo. SPAIN

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> De: Valerie Brew-Parrish <brew-parrish(AT)juno.com>
> A: vent-users(AT)eskimo.com
> Asunto: Re: NON INVASIVE VENTILATION
> Fecha: viernes 19 de septiembre de 1997 17:45
>
> Hello Doctor,
> I am thrilled you are so interested in non-invasive ventilation, which IS
> the type I use. Dr. Bach is right on target with what he has told you. I
> am a polio survivor, and the majority of polio survivors utilize
> non-invasive ventilation. I use a plv-100. My doctor, Oscar Schwartz, is
> an authority like Dr. Bach on non-invasive ventilation. Oscar made me a
> mouth piece out of scuba (diving equipment). I plop the mouth-piece in
> and breathe all night. My friend, Dr. Ronald Doneff, uses an electric
> wheelchair for mobility, has little use of his arms, and he uses
> non-invasive ventilation 24 hrs. a day. He uses a bantam ventilator
> during the day. When he speaks, he takes the hose and mouth-piece out of
> his mouth and talks between breaths. At night he sleeps in the tank, or
> iron-lung. Dr. Doneff has had a thriving medical practice for 30 yrs. He
> contracted polio while he was a resident at Indiana School of Medicine. I
> asked him to give a speech to the polio survivor group I sponsored. Most
> in the group were minimally disabled by polio, but oh were they on their
> pity pots. Dr. Doneff proves, anything can be done despite disability.
> The other physicians that you can network with is my doctor, Oscar
> Schwartz. He probably sees most of the respiratory polio survivors in the
> midwest section of the U.S. His phone number is: 314-645-8177; Another
> great respiratory doctor and my dear friend, is Dr. Allen Goldberg. Allen
> has traveled throughout Europe (France) studying non-invasive
> ventilation. He too has written extensively on this subject. In fact, one
> of his articles was about me in CHEST. He is also a good friend of Dr.
> Bach's. Allen works at Loyola Hosp. in Chicago. His number is:
> 708-327-9067. The other doctor you would enjoy knowing is Dr. Auguta
> Alba. She works at Goldwater Memorial Hospital in New York. Her phone #
> is: 212-318-4500. She has a web pg. that I found the other day by
> searching ventilator users. Her article talks about non-invasive
> ventilation. She taught a workshop in May that I attended about
> glassopharageal breathing. (excuse my spelling) Anyway, polio survivors
> refer to the technique as "frog breathing." Say the word "GULP" A FEW
> TIMES and quickly swallow the air. It does help you to breathe. My
> non-disabled daughter was a pro at the technique. I hope this information
> helps you dloctor. I also hope that you will attend the next
> international polio conference in 1999 in St. Louis. You will see all
> kinds of non-invasive ventilation!
> Valerie