Today started off good, no pain this morning.
Around 3pm my feet started tingling, by 5pm they were hurting pretty bad. Now that pain has traveled up my legs. I am also itching very badly.
My neurologist is aware of my pain but all we do is trial and error with drugs that have proven ineffective for the majority of nerve pain patients.
The most recent experiment is Lyrica. It is an improvement over gabapentin. Now instead of most days being bad, maybe 1 in 5 is bad. Unfortunately for me today is one of those 1 in 5.
The pain episodes have been shorter on Lyrica, about 4 hours has been the longest, I’m about two hours into the serious bad pain part of this one so hoping things will get better soon.
I’m a little afraid to take more drugs, I’ve already vomited once today.
I am with Group Health so not a lot of choices in terms of doctors. Nor is it possible to see anyone on short notice, they are badly overbooked.
Kaiser is investing in billions of dollars worth of new equipment. What they really need more than new equipment is doctors with an ounce of compassion.