Yesterday’s pain flare up is the longest I’ve experienced while using Lyrica. The intense portion only lasted about four hours, but there is a small amount of residual pain today and significant allodynia on my belly and thighs.
This morning I quaffed another 160mg of tianeptine sodium and six kratom capsules in hopes of smothering what is left of the pain. Also took 50mg of Benadryl hoping it would help with itching which also persists.
Another fun symptom that I have begun experiencing during flare-ups involving my feet is cramping of toes or at least the muscles that control them. It seems touching the top of my foot about 2-1/2 inches back from the toes will sometimes trigger these spams as if the sensory nerve information is somehow leaking back into the motor neurons.
Another thing to e-mail my neurologist about. He is less than thrilled about the amount of feedback he gets from me, he obviously has a very high workload as just scheduling a phone call requires on average 16 days of lead time. But I am not responsible for his workload, that’s an issue with Group Health policy, their willingness to hire enough staff, and so as much as I don’t like to be a pain I gotta get help with this so I must.
The whole health care situation in this country is abysmal. More than two weeks just to get a call back, not acceptable but I have no choice. Rich people they got choices, they can go pay someone $500 an our for a message or whatever, but my finances don’t permit such extravagance.
Today started off good, no pain this morning.
Around 3pm my feet started tingling, by 5pm they were hurting pretty bad. Now that pain has traveled up my legs. I am also itching very badly.
My neurologist is aware of my pain but all we do is trial and error with drugs that have proven ineffective for the majority of nerve pain patients.
The most recent experiment is Lyrica. It is an improvement over gabapentin. Now instead of most days being bad, maybe 1 in 5 is bad. Unfortunately for me today is one of those 1 in 5.
The pain episodes have been shorter on Lyrica, about 4 hours has been the longest, I’m about two hours into the serious bad pain part of this one so hoping things will get better soon.
I’m a little afraid to take more drugs, I’ve already vomited once today.
I am with Group Health so not a lot of choices in terms of doctors. Nor is it possible to see anyone on short notice, they are badly overbooked.
Kaiser is investing in billions of dollars worth of new equipment. What they really need more than new equipment is doctors with an ounce of compassion.
Just awoke from another prison dream / nightmare. It’s been 4-years and 4-months now and these still keep coming.
In this dream, they had come and re-captured me and put me back into prison after I had been released.
I had been there again for many months with no court action or explanation of why they put me there. I talked to a woman who came in from a church, she was clergy of some sort. She helped arrange to get me released.
The warden came and talked to me as they prepared to release me. He said they had a record of my having been released, no record of my having been brought back nor reason I should have been.
I was tempted to go ballistic but I thought what I want to do is first get out, then leave the state so there is no chance fo being recaptured again without an extradition procedure and then at least some explanation of why, and then find a lawyer and sue their asses off.
At this point our dog woke me up barking at something outside, I know not what but pretty much anything moving in a six mile radius qualifies as worthy to bark at.
My hand is only slightly better today, but pain level is way better. That said, the worst it has gotten under Lyrica is about a 3 on a scale of 1-to-10, where as before I was regularly hitting 8’s and 9’s and occasionally 10’s.
However, mentally I am feeling down in the dumps today and a fair amount of anxiety with absolutely no good reason for this. I think Lyrica affects me mentally in a less than desirable way, but the reduction in pain is worth it.
Inflamed Right Hand
This is my right hand during a pain flare-up. Usually only my left hand gets inflamed but this time it’s both.